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sheila_G
#1 Posted : Wednesday, May 04, 2011 10:10:14 PM Quote
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Joined: 3/28/2011
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Location: North Preston
Hi all

Can anyone tell me what the best alternative to mtx is if trying to avoid complete hair loss. My hair is still coming out big time and have little left at the back. I am quite depressed now, crying all the time and I won't go out now except to work. I am ringing rheumatology tomorrow to tell them I want to come off mtx but I am scared they will give me something worse. Any suggestions please?
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Rose-B
#2 Posted : Wednesday, May 04, 2011 10:22:20 PM Quote
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Joined: 4/20/2010
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Location: Somerset


Hello Ceri,

I think I may have read the mtx by injection may be better, but unfortunately when I took
mtx it did not effect my hair.

Good luck tomorrow and let us know how you get on

Rose
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dorat
#3 Posted : Wednesday, May 04, 2011 10:27:53 PM Quote
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Location: Huddersfield
Hi Sheila,

I really feel for you with your hair loss, it is one of the worst things I'm sure that can happen to a woman.
Have you thought about seeing a trichologist (think that's the right word) . Perhaps you can get your GP to refer you and maybe find out once and for all the reason for your hairloss and if it can be restored?
Have you tried any other drugs for the RA apart from mtx?
Good luck with ringing your rheumy dept tomorrow, i hope they come up with a good alternative for you.

Love, Doreen xx
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Brenda-I
#4 Posted : Thursday, May 05, 2011 9:07:23 AM Quote
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Hi Sheila,When I first started MTX my hair came out at an alarming rate especially when I washed it.I was only taking one Folic Acid per week but my rheumy nurse told me to increase the dose to 4 a week.I now take MTX on a Sat. and then one FA on Mon.Tues.Wed. and Thurs.The hair loss has stopped and my hair is now back to it's usual thickness.I know it is a worry when you start to lose your hair as it's our 'crowning glory'and we all want our hair to look nice.Hope you get some help when you speak to your rheumy nurse. Brenda.x
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sheila_G
#5 Posted : Thursday, May 05, 2011 6:39:57 PM Quote
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Location: North Preston
Thanks all

I am going to take your rheumy nurse's advice Brenda and up my folic acid to 4 a week and see if that does anything.

Love Sheila x
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Brenda-I
#6 Posted : Thursday, May 05, 2011 9:53:43 PM Quote
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Hello again Sheila,Just to say that if you increase the Folic Acid don't expect your hair to improve overnight,it took mine a couple of months to show any improvement. My hair was fine while I was only on Hydroxy but as soon as MTX was added that's when the hair loss started.In fact the consultant lowered my MTX dose,not only because of the hair loss but I came out in a nasty itchy rash.I think the hair loss was caused because I was put on a high dose of MTX straight away instead of it gradually being increased.Perhaps you could ask if changing to a different drug would help.Not sure if other drugs also cause hair loss,other members may have the answer to that one. Brenda.x
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Dorothy-W
#7 Posted : Friday, May 06, 2011 8:06:36 AM Quote
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Joined: 9/13/2010
Posts: 786
Location: east anglia
hi i am now on 25ml mtx injection was on 25mg tab also hydroxy,folic, my hair is fine at the moment but only on jags 1 week did notice more than usuall in plug hole on washing it,had the skin thing dermatology (biopsy) said i have excema i dont think so as i didnt have a rash till 2yrs ago when started mtx but they are the experts,keep at it i feel the better for mtx so if i need to lose the hair so be it,i have read on here it does come back,can always wear a hat.i have now got a new rhummy nurse and she is so on the ball i feel i am now getting info i should have got in the first place, i got more from the people on here, remember all drugs have side effects.talk to your nurse first and if you are feeling down everything feels so much worse,good luck
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